Quality of life in children with hypoplastic left heart syndrome
Article first published online: 20 DEC 2006
©2006 The Author(s)/Journal Compilation © 2006 Foundation Acta Pædiatrica/Acta Pædiatrica
Volume 96, Issue 1, pages 53–57, January 2007
How to Cite
Mellander, M., Berntsson, L. and Nilsson, B. (2007), Quality of life in children with hypoplastic left heart syndrome. Acta Paediatrica, 96: 53–57. doi: 10.1111/j.1651-2227.2007.00039.x
- Issue published online: 20 DEC 2006
- Article first published online: 20 DEC 2006
- Received 2 July 2006; revised 2 July 2006; accepted 6 July 2006
- Congenital heart defects;
- Quality of life
Aim: To measure quality of life in children with hypoplastic left heart syndrome and their families.
Methods: A questionnaire exploring socioeconomic status, structure and function of networks and psychological well-being was completed by the families of all 18 patients older than 2 years (age range 2.7–10.6). The results were compared with those of 180 healthy Swedish children matched for age and sex.
Results: There were no significant differences between the groups in any of the aspects of socioeconomic status. Study group parents had not more available time for their child (p < 0.05) and more separations/divorces (p < 0.01). The patients had lower self-esteem (p < 0.05), more psychosomatic symptoms (p < 0.001) and lower peer acceptance (p < 0.01) than control children.
Conclusion: With regard to psychological well-being, quality of life was significantly lower in children with hypoplastic left heart syndrome than in healthy controls.