The International Family Quality of Life Project: Goals and Description of a Survey Tool

Authors


Barry J. Isaacs, Director, Research and Evaluation, Surrey Place Centre, 2 Surrey Place, Toronto, ON, Canada M5S 2C2, Canada. Tel: +1 416 925 5141; Fax: +1 416 923 8476; E-mail: barry.isaacs@surreyplace.on.ca

Abstract

Abstract  The International Family Quality of Life Project, begun in 1997, involves the collaboration of a team of researchers from Australia, Canada, Israel, and the United States whose aim was to conceptualize “family quality of life” and develop a survey tool. The authors describe the basis for the conceptualization and explain the survey development process. An initial version of the survey (the Family Quality of Life Survey—FQoLS-2000) was used to collect FQoL data across several countries in the early 2000s. The experiences of survey respondents and administrators and subsequent data analysis suggested modifications that resulted in an updated version—the FQoLS-2006. This new version focuses on 9 areas of family life: health, finances, family relationships, support from other people, support from disability-related services, influence of values, careers and planning for careers, leisure and recreation, and community interaction. The authors explore each of these areas in relation to 6 underlying concepts: importance, opportunities, initiative, attainment, stability, and satisfaction. Other sections entail obtaining information on the family make-up, family member, or members, with intellectual disability, and an overall summary of FQoL. The authors note that information from the FQoLS-2006 should be useful for a wide variety of purposes related to providing supports to individuals and families.

Ancillary