Disclosures None of the authors have conflicts of interest.
An evaluation of the patient education programme for Parkinson’s disease in clinical practice
Article first published online: 26 SEP 2011
© 2011 Blackwell Publishing Ltd
International Journal of Clinical Practice
Volume 65, Issue 11, pages 1173–1179, November 2011
How to Cite
A’Campo, L. E. I., Spliethoff-Kamminga, N. G. A. and Roos, R. A. C. (2011), An evaluation of the patient education programme for Parkinson’s disease in clinical practice. International Journal of Clinical Practice, 65: 1173–1179. doi: 10.1111/j.1742-1241.2011.02765.x
- Issue published online: 14 OCT 2011
- Article first published online: 26 SEP 2011
- Paper received June 2011, accepted July 2011
Aim: The Patient Education Programme for Parkinson’s disease (PEPP) was assessed in a recent randomised controlled trial (RCT). In this study, a trend was identified towards significant improvement of patients’ quality of life (Qol) as well as a significant reduction of caregivers’ psychosocial burden and need for help. This study is aimed at evaluating the effectiveness of the PEPP in clinical practice as compared with the RCT in an academic setting. The second aim is to assess its effectiveness in clinical practice at 6-month follow-up.
Methods: Fifty-five patients and 50 caregivers from nine clinical settings participated in the PEPP consisting of eight weekly sessions of 90 min. Self-report questionnaires were used to assess patients’ Qol (PDQ-39) and caregivers’ psychosocial burden and need for help (BELA-A-k) at baseline, directly after the programme and at 6-month follow-up. To compare the baseline data and short-term effects, data were used from an RCT study which included 64 Parkinson’s disease patients and 46 caregivers.
Results: Compared with the RCT control group, significant effects, after Bonferoni adjustment, were found for patients’ Qol as well as for caregivers’ psychosocial burden and need for help. No significant changes were found between baseline scores compared with 6-month follow-up. Scores returned to baseline levels at 6-month follow-up.
Conclusions: Effects from the RCT study were replicated and the effect on patients’ Qol was now significant. However, at 6-month follow-up, scores returned to baseline levels, indicating the need for some form of a booster session.