PURPOSE. The purpose of this analysis was to examine parents’ (N = 142) concerns about issues (i.e., privacy of information, insurance, healthcare costs, employment, school) related to their children's genetic conditions.
DESIGN AND METHODS. Using a series of matrices, thematic analysis was conducted focusing on parents’ concerns.
RESULTS. Parents were less concerned with privacy and more concerned with insurance, healthcare costs, employment, and school issues.
PRACTICE IMPLICATIONS. Nurses and other healthcare professionals need to give parents the opportunity to discuss their concerns and to assist parents with strategies and resources to meet the needs of their children and families.