Population Genomics and Research Ethics with Socially Identifable Groups

Authors

  • Joan L. McGregor

    1. Lincoln Professor of Bioethics and the Director of Bioethics, Policy, and Law Program at the School of Life Sciences and Philosophy at Arizona State University.
    Search for more papers by this author

Abstract

In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups.

Ancillary