Personalized Disclosure by Information-on-Demand: Attending to Patients' Needs in the Informed Consent Process
Article first published online: 12 JUL 2012
© 2012 American Society of Law, Medicine & Ethics, Inc.
The Journal of Law, Medicine & Ethics
Special Issue: SYMPOSIUM: Pharmaceutical Firms and the Right to Health
Volume 40, Issue 2, pages 359–367, Summer 2012
How to Cite
Siegal, G., Bonnie, R. J. and Appelbaum, P. S. (2012), Personalized Disclosure by Information-on-Demand: Attending to Patients' Needs in the Informed Consent Process. The Journal of Law, Medicine & Ethics, 40: 359–367. doi: 10.1111/j.1748-720X.2012.00669.x
- Issue published online: 12 JUL 2012
- Article first published online: 12 JUL 2012
Obtaining informed consent has typically become a stylized ritual of presenting and signing a form, in which physicians are acting defensively and patients lack control over the content and flow of information. This leaves patients at risk both for being under-informed relative to their decisional needs and of receiving more information than they need or desire. By personalizing the process of seeking and receiving information and allowing patients to specify their desire for information in a prospective manner, we aim to shift genuine control over the informational process to patients. A new paradigm of Information on Demand, such as we suggest, would also enhance legal certainty, achieve greater congruence between the information patients want and the information they receive, and promote more meaningful patient-physician interactions, a desirable outcome that has been difficult to achieve by other means.