Burdens and difficulties experienced by caregivers of children and adolescents with schizophrenia-spectrum disorders: a qualitative study
Article first published online: 27 OCT 2011
© 2011 Blackwell Publishing Asia Pty Ltd
Early Intervention in Psychiatry
Volume 5, Issue 4, pages 349–354, November 2011
How to Cite
Knock, J., Kline, E., Schiffman, J., Maynard, A. and Reeves, G. (2011), Burdens and difficulties experienced by caregivers of children and adolescents with schizophrenia-spectrum disorders: a qualitative study. Early Intervention in Psychiatry, 5: 349–354. doi: 10.1111/j.1751-7893.2011.00305.x
- Issue published online: 27 OCT 2011
- Article first published online: 27 OCT 2011
- Received 4 November 2010; accepted 6 August 2011
- qualitative research;
- quality of life;
Aim: The purpose of this qualitative study was to investigate the burdens and difficulties associated with the experience of caring for youth with schizophrenia-spectrum disorders.
Methods: Ten caregivers participated in a modified version of the Knowledge about Schizophrenia Illness interview.
Results: The most common areas of general difficulties reported by caregivers were emotional burdens and the everyday practical demands and sacrifices required in caring for their dependents. Results also suggested high levels of burden for caregivers concerning difficulties with mental health services.
Conclusion: Additional work is needed to learn more about the challenges that caregivers of youth with schizophrenia-spectrum disorders are facing, as well as to develop empirically based strategies for helping these caregivers and their dependents.