Quality of Hospice Care for Individuals with Dementia

Authors

  • Jennifer S. Albrecht PhD,

    Corresponding author
    • Department of Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, Baltimore, Maryland
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  • Ann L. Gruber-Baldini PhD,

    1. Department of Epidemiology and Public Health, University of Maryland School of Medicine, Baltimore, Maryland
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  • Erik K. Fromme MD,

    1. Division of Hematology and Medical Oncology, Knight Cancer Institute, Oregon Health & Science University, Portland, Oregon
    2. Center for Ethics in Healthcare, Oregon Health & Science University, Portland, Oregon
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  • Jessina C. McGregor PhD,

    1. Department of Pharmacy Practice, Oregon State University and College of Pharmacy, Oregon Health & Science University, Portland, Oregon
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  • David S. H. Lee PharmD, PhD,

    1. Department of Pharmacy Practice, Oregon State University and College of Pharmacy, Oregon Health & Science University, Portland, Oregon
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  • Jon P. Furuno PhD

    1. Department of Pharmacy Practice, Oregon State University and College of Pharmacy, Oregon Health & Science University, Portland, Oregon
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  • [Editorial Comments by Kathleen Unroe, MD and Diane E. Meier, MD pp 1212-1214]

Address correspondence to Jennifer S. Albrecht, Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, 220 Arch Street, 12th floor, Room 01–234, Baltimore, MD 21201. E-mail: jalbrecht@rx.umaryland.edu

Abstract

Background

Patients with dementia constitute an increasing proportion of hospice enrollees, yet little is known about the quality of hospice care for this population. The aim of this study was to quantify differences in quality of care measures between hospice patients with and without dementia.

Design

Cross-sectional analysis of data.

Setting

2007 National Home and Hospice Care Survey.

Participants

Four thousand seven hundred eleven discharges from hospice care.

Measurements

A primary diagnosis of dementia at discharge was defined according to International Classification of Diseases, Ninth Revision, codes (290.0–290.4x, 294.0, 294.1, 294.8, 331.0–331.2, 331.7, and 331.8). Quality-of-care measures included enrollment in hospice in the last 3 days of life, receiving tube feeding, depression, receiving antibiotics, lack of advanced directive or do not resuscitate order, Stage II or greater pressure ulcers, emergency care, lack of continuity of residence, and a report of pain at last assessment.

Results

Four hundred fifty (9.5%) individuals were discharged with a primary diagnosis of dementia. In multivariable analysis, individuals with dementia were more likely to receive tube feeding (odds ratio (OR) = 2.6, 95% confidence interval (CI) = 1.4–4.5) and to have greater continuity of residence (OR = 1.8, 95% CI = 1.1–3.0) than other individuals in hospice and less likely to have a report of pain at last assessment (OR = 0.6, 95% CI = 0.3–0.9).

Conclusions

The majority of quality-of-care measures examined did not differ between individuals in hospice with and without dementia. Use of tube feeding in hospice care and methods of pain assessment and treatment in individuals with dementia should be considered as potential quality-of-care measures.

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