A Blueprint for Genomic Nursing Science

Authors

  • Genomic Nursing State of the Science Advisory Panel,

  • Kathleen A. Calzone PhD, RN, APNG, FAAN,

    1. Xi, Senior Nurse Specialist, Research, National Institutes of Health, National Cancer Institute, Center for Cancer Research, Genetics Branch, Bethesda, MD
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  • Jean Jenkins PhD, RN, FAAN,

    1. Senior Clinical Advisor, National Institutes of Health, National Human Genome Research Institute, Bethesda, MD
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  • Alexis D. Bakos PhD, MPH, RN,

    1. Deputy Director, Division of Nursing, Bureau of Health Professions, Health Resources and Services Administration, Rockville, MD
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  • Ann K. Cashion PhD, RN, FAAN,

    1. Scientific Director for the NINR Intramural Research Program, National Institutes of Health, National Institute of Nursing Research, Bethesda, MD
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  • Nancy Donaldson PhD, RN, FAAN,

    1. Clinical Professor, Department of Physiological Nursing, UCSF School of Nursing, San Francisco, CA; Senior Scientist, Collaborative Alliance for Nursing Outcomes (CALNOC); Member, NQF Common Formats Expert Panel
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  • W. Gregory Feero MD, PhD,

    1. Special Advisor to the Director for Genomic Medicine, Genomic Healthcare Branch, National Human Genome Research Institute, Bethesda, MD
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  • Suzanne Feetham PhD, RN, FAAN,

    1. Nursing Research Consultant, Children's National Medical Center, Bethesda, MD and Visiting Professor, University of Wisconsin-Milwaukee
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  • Patricia A. Grady PhD, RN, FAAN,

    1. Director, National Institutes of Health, National Institute of Nursing Research, Bethesda, MD
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  • Ada Sue Hinshaw PhD, RN, FAAN,

    1. Dean and Professor, Graduate School of Nursing, Uniformed Services University of the Health Sciences, Bethesda, MD
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  • Ann R. Knebel PhD, RN, FAAN,

    1. Deputy Director, National Institutes of Health, National Institute of Nursing Research, Bethesda MD
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  • Nellie Robinson MS, RN, FAAN,

    1. Executive Vice President of Patient Care Services, Chief Nursing Officer, Children's National Medical Center, Washington, DC
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  • Mary E. Ropka PhD, RN, FAAN,

    1. Beta Kappa, Professor of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, VA
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  • Diane Seibert PhD, CRNP, FAANP,

    1. Associate Professor and Director of the Family Nurse Practitioner Program in the Graduate School of Nursing, Uniformed Services University of the Health Sciences, Bethesda, MD
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  • Kathleen R. Stevens EdD, RN, ANEF, FAAN,

    1. Professor and Director, Academic Center for Evidence-Based Practice, University of Texas Health Science Center San Antonio, San Antonio, TX
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  • Lois A. Tully PhD,

    1. Program Director, Division of Extramural Activities, National Institute of Nursing Research, Bethesda, MD
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  • Jo Ann Webb MHA, RN

    1. Senior Director, Federal Relations and Policy, American Organization of Nurse Executives, Washington, DC
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Dr. Kathleen A. Calzone, National Cancer Institute, Center for Cancer Research, Genetics Branch, 41 Medlars Drive, Building 41, RM B622, MSC 5055, Bethesda, MD 20892. E-mail: calzonek@mail.nih.gov

Abstract

Purpose: This article reports on recommendations arising from an invitational workshop series held at the National Institutes of Health for the purposes of identifying critical genomics problems important to the health of the public that can be addressed through nursing science. The overall purpose of the Genomic Nursing State of the Science Initiative is to establish a nursing research blueprint based on gaps in the evidence and expert evaluation of the current state of the science and through public comment.

Organizing Constructs: A Genomic Nursing State of the Science Advisory Panel was convened in 2012 to develop the nursing research blueprint. The Advisory Panel, which met via two webinars and two in-person meetings, considered existing evidence from evidence reviews, testimony from key stakeholder groups, presentations from experts in research synthesis, and public comment.

Findings: The genomic nursing science blueprint arising from the Genomic Nursing State of Science Advisory Panel focuses on biologic plausibility studies as well as interventions likely to improve a variety of outcomes (e.g., clinical, economic, environmental). It also includes all care settings and diverse populations. The focus is on (a) the client, defined as person, family, community, or population; (b) the context, targeting informatics support systems, capacity building, education, and environmental influences; and (c) cross-cutting themes. It was agreed that building capacity to measure the impact of nursing actions on costs, quality, and outcomes of patient care is a strategic and scientific priority if findings are to be synthesized and aggregated to inform practice and policy.

Conclusions: The genomic nursing science blueprint provides the framework for furthering genomic nursing science to improve health outcomes. This blueprint is an independent recommendation of the Advisory Panel with input from the public and is not a policy statement of the National Institutes of Health or the federal government.

Clinical Relevance: This genomic nursing science blueprint targets research to build the evidence base to inform integration of genomics into nursing practice and regulation (such as nursing licensure requirements, institutional accreditation, and academic nursing school accreditation).

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