Quality of life and impact of children with unclassified developmental delays
Article first published online: 14 JAN 2013
© 2013 The Authors. Journal of Paediatrics and Child Health © 2013 Paediatrics and Child Health Division (Royal Australasian College of Physicians)
Journal of Paediatrics and Child Health
Volume 49, Issue 2, pages E116–E121, February 2013
How to Cite
Hsieh, R.-L., Hsueh, Y.-M., Huang, H.-Y., Lin, M.-I., Tseng, W.-C. and Lee, W.-C. (2013), Quality of life and impact of children with unclassified developmental delays. Journal of Paediatrics and Child Health, 49: E116–E121. doi: 10.1111/jpc.12081
- Issue published online: 18 FEB 2013
- Article first published online: 14 JAN 2013
- Manuscript Accepted: 9 JUN 2012
- Shin Kong Wu Ho-Su Memorial Hospital. Grant Number: SKH-TMU-99-03
- the National Science Council (NSC 99-2628-B-002-061-MY3)
- developmental delay;
- family impact;
- quality of life
The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family.
In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis.
Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: −9.59, P < 0.05), global functioning is related to cognition delay (regression coefficient: −20.22, P < 0.01) and physical health of their parents (regression coefficient: 0.87, P < 0.01).
Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.