Cystic fibrosis-related diabetes in older adolescents: Parental support and self-management
Article first published online: 4 JAN 2013
© 2013, Wiley Periodicals, Inc
Journal for Specialists in Pediatric Nursing
Volume 18, Issue 1, pages 42–53, January 2013
How to Cite
Dashiff, C., Suzuki-Crumly, J., Kracke, B., Britton, L. and Moreland, E. (2013), Cystic fibrosis-related diabetes in older adolescents: Parental support and self-management. Journal for Specialists in Pediatric Nursing, 18: 42–53. doi: 10.1111/jspn.12010
This research was funded by a grant from the James Gregory Fleming Cystic Fibrosis Center, University of Alabama at Birmingham.
Disclosure: The authors report no actual or potential conflicts of interest.
Presented at the poster session of American Diabetes Association, Orlando, Florida on June 26, 2010.
- Issue published online: 4 JAN 2013
- Article first published online: 4 JAN 2013
- Manuscript Accepted: 6 OCT 2012
- Manuscript Revised: 20 JUL 2012
- Manuscript Received: 10 OCT 2011
- Gregory Fleming Cystic Fibrosis Center, University of Alabama at Birmingham
- autonomy support;
- cystic fibrosis;
- cystic fibrosis-related diabetes;
The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management.
Design and Methods
Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents.
Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care.
Education about CFRD management and support of adolescent autonomy in disease management is needed.