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Cystic fibrosis-related diabetes in older adolescents: Parental support and self-management

Authors


  • Acknowledgement

    This research was funded by a grant from the James Gregory Fleming Cystic Fibrosis Center, University of Alabama at Birmingham.

  • Disclosure: The authors report no actual or potential conflicts of interest.
  • Presented at the poster session of American Diabetes Association, Orlando, Florida on June 26, 2010.

Author contact

carol.dashiff@me.com, with a copy to the Editor: roxie.foster@ucdenver.edu

Abstract

Purpose

The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management.

Design and Methods

Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents.

Results

Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care.

Practice Implications

Education about CFRD management and support of adolescent autonomy in disease management is needed.

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