Sara Goering, Suzanne Holland, and Kelly Fryer-Edwards, “Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice,” Hastings Center Report 38, no. 2 (2008): 43–53.
Genetic Research Practices with Marginalized Communities
A Case for Responsive Justice
Version of Record online: 8 FEB 2012
2008 The Hastings Center
Hastings Center Report
Volume 38, Issue 2, pages 43–53, March-April 2008
How to Cite
GOERING, S., HOLLAND, S. and FRYER-EDWARDS, K. (2008), Genetic Research Practices with Marginalized Communities. Hastings Center Report, 38: 43–53. doi: 10.1353/hcr.2008.0027
- Issue online: 8 FEB 2012
- Version of Record online: 8 FEB 2012
Genetics researchers often work with distinct communities. To take moral account of how their research affects these communities, they need a richer conception of justice and they need to make those communities equal participants in decision-making about how the research is conducted and what is produced and published out of it.