Survivorship care plans in research and practice

Authors

  • Talya Salz PhD,

    Corresponding author
    1. Assistant Attending Outcomes Research Scientist, Department of Epidemiology and Biostatistics, Memorial Sloan-Kettering Cancer Center, New York, NY
    • Department of Epidemiology and Biostatistics, Memorial Sloan-Kettering Cancer Center, 307 East 63rd St, New York, NY 10065
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  • Kevin C. Oeffinger MD,

    1. Attending and Member, Director, Memorial Sloan-Kettering Cancer Center Adult Long-Term Follow-Up Program, Departments of Pediatrics and Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY
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  • Mary S. McCabe RN, MA,

    1. Director, Survivorship Program, Memorial Sloan-Kettering Cancer Center, New York, NY
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  • Tracy M. Layne MPH,

    1. Doctoral Student, Department of Chronic Disease Epidemiology, Yale School of Public Health, New Haven, CT
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  • Peter B. Bach MD, MAPP

    1. Member, Department of Epidemiology and Biostatistics, Memorial Sloan-Kettering Cancer Center, New York, NY
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  • DISCLOSURES: Supported by a research grant from the National Cancer Institute (R03-CA-144682-01; PI: Talya Salz).

Abstract

The Institute of Medicine (IOM) recommends the use of survivorship care plans (SCPs) for all cancer survivors. Developing useful SCPs requires understanding what survivors and their providers need and how SCPs can be implemented in practice. Published studies investigating the perspectives of stakeholders (survivors, primary care providers, and oncology providers) were reviewed regarding the content and use of SCPs. All National Cancer Institute (NCI)-designated cancer centers were surveyed concerning the extent to which SCPs for survivors of breast and colorectal cancers are in use, their concordance with the IOM's recommendation, and details about SCP delivery. Survivors and primary care providers typically lack the information the IOM suggested should be included in SCPs. Oncology providers view SCPs favorably but express concerns about the feasibility of their implementation. Fewer than one-half (43%) of NCI-designated cancer centers deliver SCPs to their breast or colorectal cancer survivors. Of those that do, none deliver SCPs that include all components recommended by the IOM. Survivors' and providers' opinions about the use of SCPs are favorable, but there are barriers to implementation. SCPs are not widely used in NCI-designated cancer centers. Variation in practice is substantial, and many components recommended by the IOM framework are rarely included. CA Cancer J Clin 2012; © 2012 American Cancer Society.

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