Haemophilia

© John Wiley & Sons Ltd

Cover image for Vol. 19 Issue s3

Early View (Online Version of Record published before inclusion in an issue)

Co-Editors C. A. Lee, C. Kessler and M. Makris

Impact Factor: 2.597

ISI Journal Citation Reports © Ranking: 2011: 35/68 (Hematology)

Online ISSN: 1365-2516

  1. Original Articles

    1. Use of global assays to understand clinical phenotype in congenital factor VII deficiency

      L. A. Greene, N. A. Goldenberg, M. L. Simpson, E. Villalobos-Menuey, C. Bombardier, S. S. Acharya, P. J. Santiago-Borrero, A. Cambara and D. M. DiMichele

      Article first published online: 20 MAY 2013 | DOI: 10.1111/hae.12160

  2. Letters to the Editor

    1. A novel homozygous missense mutation in the factor VII gene of severe factor VII deficiency in a pedigree: a description of two cases

      T. Zhang, L. Sun and Y. Meng

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12176

  3. Original Articles

    1. Rapid musculoskeletal ultrasound for painful episodes in adult haemophilia patients

      A. Ceponis, I. Wong-Sefidan, C. S. Glass and A. von Drygalski

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12175

  4. Letters to the Editor

    1. Colonoscopy in patients with haemophilia: the duration of clotting factor coverage must be adjusted to suit the procedure

      V. Tintillier, J. Branche, V. Maunoury, J. Goudemand and P. Renom

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12174

  5. Original Articles

    1. Bypass therapy assay testing as a strategy to reduce costs for treatment of haemophilia patients with inhibitors

      J. W. Hay, S. C. Chaugule and G. Young

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12171

    2. A survey of patients with haemophilia to understand how they track product used at home

      N. S. Sholapur, R. Barty, G. Wang, T. Almonte and N. M. Heddle

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12170

    3. Estimating unknown parameters in haemophilia using expert judgement elicitation

      K. Fischer, D. Lewandowski and M. P. Janssen

      Article first published online: 15 MAY 2013 | DOI: 10.1111/hae.12166

    4. Obesity in haemophilia patients: effect on bleeding frequency, clotting factor concentrate usage, and haemostatic and fibrinolytic parameters

      A. Tuinenburg, S. Biere-Rafi, M. Peters, P. Verhamme, K. Peerlinck, M. J. H. A. Kruip, B. A. P. Laros-Van Gorkom, M. Roest, J. C. M. Meijers, P. W. Kamphuisen and R. E. G. Schutgens

      Article first published online: 10 MAY 2013 | DOI: 10.1111/hae.12182

    5. Combined administration of FVIII and rFVIIa improves haemostasis in haemophilia A patients with high-responding inhibitors – a thrombin generation-guided pilot study

      T. Livnat, U. Martinowitz, S. Azar-Avivi, A. Zivelin, T. Brutman-Barazani, A. Lubetsky and G. Kenet

      Article first published online: 10 MAY 2013 | DOI: 10.1111/hae.12181

    6. Results from a large multinational clinical trial (guardian™3) using prophylactic treatment with turoctocog alfa in paediatric patients with severe haemophilia A: safety, efficacy and pharmacokinetics

      R. Kulkarni, F. A. Karim, S. Glamocanin, D. Janic, V. Vdovin, M. Ozelo, L. Rageliene, E. Carboni, P. Laguna, G. Dobaczewski, S. Seremetis, A. Lindblom and E. Santagostino

      Article first published online: 8 MAY 2013 | DOI: 10.1111/hae.12165

    7. Results from a large multinational clinical trial (guardian™1) using prophylactic treatment with turoctocog alfa in adolescent and adult patients with severe haemophilia A: safety and efficacy

      S. R. Lentz, M. Misgav, M. Ozelo, S. Z. Šalek, D. Veljkovic, M. Recht, M. Cerqueira, A. Tiede, B. Brand, M. E. Mancuso, S. Seremetis, A. Lindblom and U. Martinowitz

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12159

  6. Letters to the Editor

    1. Triple coronary artery bypass graft surgery in a patient with factor VII deficiency: a case report

      F. Frattini, C. Bonfanti, P. Piccoli, N. Camurri, P. Mantovani, I. Terenziani, G. Caramaschi, M. Rambaldini, F. Manzato and M. Franchini

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12164

    2. Consequences of delayed therapy for sports-related bleeds in patients with mild-to-moderate haemophilia and type 3 von Willebrand's disease not on prophylaxis

      R. Kumar, A. M. Stain, P. Hilliard and M. Carcao

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12162

    3. Total knee arthroplasty in haemophilic arthropathy with severe flexion deformity and HIV–TB co-infection: a case report

      S. S. Mohanty and K. K. Dash

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12157

  7. Original Articles

    1. Results of the WIRK prospective, non-interventional observational study of recombinant activated factor VII (rFVIIa) in patients with congenital haemophilia with inhibitors and other bleeding disorders

      I. Birschmann, R. Klamroth, H. Eichler, J. Schenk, C. M. Kirchmaier and S. Halimeh

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12156

    2. Head-to-head comparison of the pharmacokinetic profiles of a high-purity factor IX concentrate (AlphaNine®) and a recombinant factor IX (BeneFIX®) in patients with severe haemophilia B

      T. Lissitchkov, M. Matysiak, K. Zavilska, P. Laguna, L. Gercheva, A. Antonov, A. Moret, P. Caunedo, J. A. Aznar, M. K. Woodward and A. Páez

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12148

  8. Letters to the Editor

    1. Identification of a homozygous Cys410Ser mutation in the von Willebrand factor D2 domain causing type 2A(IIC) von Willebrand disease phenotype in an Iranian patient

      M. S. Enayat, S. Ravanbod, M. Rassoulzadegan, M. Jazebi, F. Ala, U. Budde, S. Schneppenheim, T. Obser and R. Schneppenheim

      Article first published online: 7 MAY 2013 | DOI: 10.1111/hae.12161

  9. Review Articles

    1. Is prophylaxis required for delivery in women with factor VII deficiency?

      L. M. Baumann Kreuziger, Colleen T. Morton and Mark T. Reding

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12167

  10. Original Articles

    1. Impact of HLA alleles and cytokine polymorphisms on inhibitors development in children with severe haemophilia A

      H. Pergantou, I. Varela, O. Moraloglou, M. Economou, K. Spanou, Z. Kapsimali, N. Constantinidou and H. Platokouki

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12168

    2. The experience of girls and young women with inherited bleeding disorders

      K. Khair, M. Holland and D. Pollard

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12155

  11. Reviews Articles

    1. A child with acquired factor XIII deficiency: case report and literature review

      R. Kessel, C. Hu, L. Shore-Lesserson, J. Rand and D. Manwani

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12145

  12. Original Articles

    1. Inhibitors in haemophilia B: the Italian experience

      G. Castaman, E. Bonetti, M. Messina, M. Morfini, A. Rocino, F. A. Scaraggi and G. Tagariello, Italian Association of Hemophilia Centers

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12158

  13. Review Articles

    1. Advances in the treatment of inherited coagulation disorders

      M. A. Escobar

      Article first published online: 22 APR 2013 | DOI: 10.1111/hae.12137

  14. Letter to the Editors

    1. Response to the Letter to the Editor by Ewenstein BM and Reininger AJ

      A. Klukowska, V. Komrska, M. Jansen and P. Laguna

      Article first published online: 19 APR 2013 | DOI: 10.1111/hae.12154

  15. Original Articles

    1. Establishing a harmonized haemophilia registry for countries with developing health care systems

      A. Alzoebie, M. Belhani, P. Eshghi, A. O. Kupesiz, M. Ozelo, M. T. Pompa, J. Potgieter and M. Smith

      Article first published online: 17 APR 2013 | DOI: 10.1111/hae.12147

  16. Letters to the Editor

    1. Acquired von Willebrand's disease in myelofibrosis and essential thrombocythemia

      J. Goyal, V. V. B. Reddy and M. B. Marques

      Article first published online: 17 APR 2013 | DOI: 10.1111/hae.12152

    2. Should ice be used in the treatment of acute haemarthrosis in haemophilia?

      M. Rajamanickam, R. Michael, V. Sampath, J. A. John, A. Viswabandya and A. Srivastava

      Article first published online: 16 APR 2013 | DOI: 10.1111/hae.12163

  17. Original Articles

    1. Outcome of acquired haemophilia in France: the prospective SACHA (Surveillance des Auto antiCorps au cours de l'Hémophilie Acquise) registry

      J. Y. Borg, B. Guillet, V. Le Cam-Duchez, J. Goudemand and H. Lévesque, The SACHA Study Group

      Article first published online: 10 APR 2013 | DOI: 10.1111/hae.12138

    2. Physical activity and functional abilities in adult males with haemophilia: a cross-sectional survey from a single US haemophilia treatment centre

      J. Baumgardner, L. Elon, A. Antun, S. Stein, M. Ribeiro, L. Slovensky and C.L. Kempton

      Article first published online: 10 APR 2013 | DOI: 10.1111/hae.12134

    3. The impact of haemarthropathy on the QoL of Korean severe haemophilia A patients: the critical level of haemarthropathy for the QoL

      C. W. You

      Article first published online: 10 APR 2013 | DOI: 10.1111/hae.12131

    4. Tranexamic acid without prophylactic factor replacement for prevention of bleeding in hereditary bleeding disorder patients undergoing endoscopy: a pilot study

      A. Davis, M. Walsh, P. McCarthy, G. Brown, S. Roberts, H. Tran, A. Street, C. Y. Fong and W. Kemp

      Article first published online: 8 APR 2013 | DOI: 10.1111/hae.12146

    5. Potential for development of haemophilia link nurse role within UK hospitals

      C. Forrester, H. Bielby, S. Johns, J. Efford, M. Holland and K. Khair, The United Kingdom Haemophilia Nurse's Association

      Article first published online: 8 APR 2013 | DOI: 10.1111/hae.12144

    6. Molecular basis of quantitative fibrinogen disorders in 27 patients from India

      E. Sumitha, G. R. Jayandharan, N. Arora, A. Abraham, S. David, G. Sankari Devi, P. Shenbagapriya, S. C. Nair, B. George, V. Mathews, M. Chandy, A. Viswabandya and A. Srivastava

      Article first published online: 8 APR 2013 | DOI: 10.1111/hae.12143

    7. Patient-reported outcomes of 182 adults with severe haemophilia in Germany comparing prophylactic vs. on-demand replacement therapy

      W. Mondorf, W. Kalnins and R. Klamroth

      Article first published online: 8 APR 2013 | DOI: 10.1111/hae.12136

    8. The effect of labour on the coagulation system in the term neonate

      A. A. Kulkarni, M. Osmond, M. Bapir, A. Riddell, C. Smith, C. A. Lee and R. A. Kadir

      Article first published online: 8 APR 2013 | DOI: 10.1111/hae.12115

    9. Successful percutaneous coronary intervention in a patient with combined deficiency of FV and FVIII due to novel compound heterozygous mutations in LMAN1

      A. J. Patel, H.-H. Liu, R. A. Lager, V. Malkovska and B. Zhang

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12128

    10. Models for institutional and professional accreditation of haemophilia centres in Italy

      G. Calizzani, S. Vaglio, R. Arcieri, I. Menichini, A. Tagliaferri, S. Antoncecchi, M. T. Carloni, A. Breda, E. Santagostino, A. Ghirardini, M. R. Tamburrini, M. Morfini, P. M. Mannucci and G. Grazzini

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12141

    11. Intracranial haemorrhage in von Willebrand disease: a report on six cases

      V. Labarque, A. M. Stain, V. Blanchette, W. H. A. Kahr and M. D. Carcao

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12142

    12. Real-world outcomes with recombinant factor VIIa treatment of acute bleeds in haemophilia patients with inhibitors: results from the international ONE registry

      H. Chambost, E. Santagostino, M. Laffan and K. Kavakli, The ONE Registry Steering Committee on behalf of the investigators

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12140

    13. Product-dependent anti-factor VIII antibodies

      S. Butenas, J. Krudysz-Amblo, G. E. Rivard and K. G Mann

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12127

    14. You have free access to this content
      Haemophilia care in Europe – a survey of 35 countries

      B. O'Mahony, D. Noone, P. L. F. Giangrande and L. Prihodova

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12125

    15. The challenges of the homeless haemophilia patient

      A. Lambing, P. Kuriakose, E. Kachalsky and L. Mueller

      Article first published online: 4 APR 2013 | DOI: 10.1111/hae.12124

    16. Assessment of individual dose utilization vs. physician prescribing recommendations for recombinant activated factor VII (rFVIIa) in paediatric and adult patients with congenital haemophilia and alloantibody inhibitors (CHwI): the Dosing Observational Study in Hemophilia (DOSE)

      R. A. Gruppo, C. M. Kessler, E. J. Neufeld and D. L. Cooper

      Article first published online: 1 APR 2013 | DOI: 10.1111/hae.12113

    17. What should men living with severe haemophilia need to know? The perspectives of Canadian haemophilia health care providers

      S. Lane, E. Arnold, K. E. Webert, A. Chan, I. Walker and N. M. Heddle

      Article first published online: 1 APR 2013 | DOI: 10.1111/hae.12104

    18. Factors affecting the Haemophilia Joint Health Score in children with severe haemophilia

      M. Bladen, E. Main, N. Hubert, E. Koutoumanou, R. Liesner and K. Khair

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12108

    19. Factor VIII genotype characterization of haemophilia A affected patients with transient and permanent inhibitors: a comprehensive Argentine study of inhibitor risks

      L. C. Rossetti, I. Szurkalo, C. P. Radic, M. M. Abelleyro, L. Primiani, D. Neme, M. Candela, R. P. Bianco, M. de Tezanos Pinto, I. B. Larripa and C. D. De Brasi

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12105

    20. The effects of repetitive haemarthrosis on postural balance in children with haemophilia

      F. M. B. Souza, P. McLaughlin, R. P. Pereira, N. P. Minuque, M. H. M. Mello, C. Siqueira, P. Villaça and C. Tanaka

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12106

    21. von Willebrand factor contributes to longer half-life of PEGylated factor VIII in vivo

      L. Tang, L. Leong, D. Sim, E. Ho, J.-M. Gu, D. Schneider, R. I. Feldman, F. Monteclaro, H. Jiang and J. E. Murphy

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12116

  18. Review Articles

    1. The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity

      C. Negrier, A. Seuser, A. Forsyth, S. Lobet, A. Llinas, M. Rosas and L. Heijnen

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12118

  19. Original Articles

    1. Radioactive synovectomy with 90yttrium and 153samarium hydroxyapatite in haemophilic joints: preliminary study on radiation safety

      S. Thomas, J. D. Mendes, S. A. Souza, C. S. Lorenzato, P. E. Assi, L. R. L. Pacheco, M. B. Gabriel, A. Bordim, B. Gutfilen and L. M. B. da Fonseca

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12122

    2. Treatment for life for severe haemophilia A– A cost-utility model for prophylaxis vs. on-demand treatment

      A. Farrugia, J. Cassar, M. C. Kimber, M. Bansal, K. Fischer, G. Auserswald, B. O'Mahony, K. Tolley, D. Noone and S. Balboni

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12121

    3. Similarity in joint function limitation in Type 3 von Willebrand's disease and moderate haemophilia A

      S. L. Sood, A. Cuker, C. Wang, A. D. Metjian, E. Y. Chiang, J. M. Soucie and B. A. Konkle, HTCN Study Investigators

      Article first published online: 28 MAR 2013 | DOI: 10.1111/hae.12119

  20. Review Articles

    1. Is haemophilia B less severe than haemophilia A?

      P. M. Mannucci and M. Franchini

      Article first published online: 21 MAR 2013 | DOI: 10.1111/hae.12133

  21. Original Articles

    1. Protected by nature? Effects of strenuous physical exercise on FVIII activity in moderate and mild haemophilia A patients: a pilot study

      W. G. Groen, I. E. M. den Uijl, J. van der Net, D. E. Grobbee, Ph. G. de Groot and K. Fischer

      Article first published online: 19 MAR 2013 | DOI: 10.1111/hae.12111

    2. Variability in platelet- and collagen-binding defects in type 2M von Willebrand disease

      D. M. Larsen, S. L. Haberichter, J. C. Gill, A. D. Shapiro and V. H. Flood

      Article first published online: 18 MAR 2013 | DOI: 10.1111/hae.12117

    3. Novel coagulation factor concentrates: Issues relating to their clinical implementation and pharmacokinetic assessment for optimal prophylaxis in haemophilia patients

      R. Ljung, G. Auerswald, G. Benson, A. Jetter, V. Jiménez-Yuste, T. Lambert, M. Morfini, E. Remor, B. Sørensen and S. Z. Šalek

      Article first published online: 6 FEB 2013 | DOI: 10.1111/hae.12094

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