Journal of Clinical Nursing

Cover image for Vol. 26 Issue 19-20

Edited By: Editor-in-Chief: Debra Jackson Editors: Sue Barnason, Carol Haigh, Leslie Gelling and Graeme D Smith

Impact Factor: 1.214

ISI Journal Citation Reports © Ranking: 2016: 52/114 (Nursing (Social Science)); 55/116 (Nursing (Science))

Online ISSN: 1365-2702

VI: Understanding patient experiences


Debra Jackson, Editor, Journal of Clinical Nursing
debra.jackson@uts.edu.au
July 2012

The decision to focus on patient experiences… reflects the desire to illuminate the experiences, needs and perspectives of the end users of health services and nursing care, and position these accounts as central to our discourses about nursing, nursing knowledge and clinical practice (Jackson 2008:147)

It gives me great pleasure to present this virtual issue of the Journal of Clinical Nursing. This issue presents a collection of papers that focus on understanding the patient experience. Research that focuses on patients and their experience of health and ill-health, disability rehabilitation and recovery is essential if we are to generate the information that is needed to better meet the needs of those people requiring nursing care.

While focussing on variant conditions and life stages, this eclectic collection of papers also are informed by various methodologies. Yet all have one thing in common – the desire to present perspectives of our patients. In selecting the articles for inclusion in this special virtual issue, care was taken to select papers in which the actual voice and words of the participants were visible. Foss (2011) took a discourse analytical approach to present the reflections of patients in the 80year+ age group on the idea of patient participation. In undertaking this work she has been able to identify some of the particular concerns and views of patients in this age group.

Morken, Severinsson and Karlsen (2009) used grounded theory to explore the experiences of patients with an implantable cardioverter defibrillator, and as a result have been able to develop theory that can inform better practice for these patients. A feminist approach informed a study of young women diagnosed with sexually transmitted infections experiences of seeking healthcare (East, Jackson, O’Brien & Peters 2011). This study revealed that encounters with health personnel could sometimes be quite negative for these vulnerable young women.

A longitudinal qualitative approach was used to explore the experiences of women with breast cancer and highlight the complex adjustments and transitions faced by women in these circumstances (McCann, Illingworth, Wengstrom, Hubbard & Kearney 2010). Namiki, Rowe and Cooke (2009) adopted a qualitative approach to provide valuable insights into the experiences of older people in end-stage kidney disease who are dependent on home haemodialysis. A similar approach was used to explore the experiences of Punjabi Sikh patients undergoing cardiac rehabilitation subsequent to myocardial infarction, and highlighted a need for culturally appropriate services (Galdas & Kang 2010).

Reflecting on this collection of papers, it is clear that no matter how much nurses develop new roles and move into new frontiers, the well-being of the patients, clients, families and communities for whom we care remains our most central concern. The theme of patient experiences is one that is regularly published in the Journal of Clinical Nursing, there remains considerable work to be done in understanding the range of patient experiences and concerns when faced with various health problems. The Editorial Team at the Journal of Clinical Nursing has an on-going commitment to publishing papers that make the patient voice visible and draw attention to the experiences and needs of patients and clients. We continue to welcome papers that give voice to patients and highlight their experiences.

Virtual Issue:

Healthcare experiences of women who been diagnosed with a sexually transmitted infection
Leah East, Debra Jackson, Louise O’Brien and Kathleen Peters

Elders and patient participation revisited – a discourse analytical approaqch to older persons’ reflections on patient participation
Christina Foss

Punjabi Sikh patients’ cardiac rehabilitation experiences following myocardial infarction: a qualitative study
Paul M Galdas and H Bindy K Kang

Editorial: Patient experiences, family participation and professional roles
Debra Jackson

Transitional experiences of women with breast cancer within the first following diagnosis
Lisa McCann, Nicola Illingworth, Yvonne Wengström, Gill Hubbard and Nora Kearney

Reconstructing unpredictability: experiences of living with an implantable cardioverter defibrillator over time
Ingvild Margreta Morken, Elisabeth Severinsson and Bjørg Karlsen

Living with home-based haemodialysis: insights from older people
Satoko Namiki, Jennifer Rowe and Marie Cooke

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