Volume 109, Issue 18
Research Article

Proximity to Pediatric Cardiac Surgical Care among Adolescents with Congenital Heart Defects in 11 New York Counties

Kristin M. Sommerhalter

Corresponding Author

E-mail address: kristin.sommerhalter@health.ny.gov

New York State Department of Health, Albany, New York

Correspondence to: Kristin M. Sommerhalter, Bureau of Environmental and Occupational Epidemiology, New York State Department of Health, Corning Tower, Room 1203, Albany, New York 12237. E‐mail: kristin.sommerhalter@health.ny.govSearch for more papers by this author
Tabassum Z. Insaf

New York State Department of Health, Albany, New York

Department of Epidemiology and Biostatistics, School of Public Health, University at Albany, Rensselaer, New York

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Tugba Akkaya‐Hocagil

New York State Department of Health, Albany, New York

Department of Epidemiology and Biostatistics, School of Public Health, University at Albany, Rensselaer, New York

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Claire E. McGarry

New York State Department of Health, Albany, New York

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Sherry L. Farr

U.S. Centers for Disease Control and Prevention, Atlanta, Georgia

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Karrie F. Downing

U.S. Centers for Disease Control and Prevention, Atlanta, Georgia

Oak Ridge Institute for Science and Education, Oak Ridge, Tennessee

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George K. Lui

Divisions of Cardiovascular Medicine and Pediatric Cardiology, Stanford School of Medicine, Stanford, California

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Ali N. Zaidi

Children's Hospital at Montefiore, Bronx, New York

Albert Einstein College of Medicine, Bronx, New York

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Alissa R. Van Zutphen

New York State Department of Health, Albany, New York

Department of Epidemiology and Biostatistics, School of Public Health, University at Albany, Rensselaer, New York

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First published: 20 November 2017
Citations: 5

Supported by the Centers for Disease Control and Prevention (Grant number: CDC‐CK12‐1202 – Emerging Infections Program).

Conflict of interest: The authors declare that there is no conflict of interest.

Abstract

Background

Many individuals with congenital heart defects (CHDs) discontinue cardiac care in adolescence, putting them at risk of adverse health outcomes. Because geographic barriers may contribute to cessation of care, we sought to characterize geographic access to comprehensive cardiac care among adolescents with CHDs.

Methods

Using a population‐based, 11‐county surveillance system of CHDs in New York, we characterized proximity to the nearest pediatric cardiac surgical care center among adolescents aged 11 to 19 years with CHDs. Residential addresses were extracted from surveillance records documenting 2008 to 2010 healthcare encounters. Addresses were geocoded using ArcGIS and the New York State Street and Address Maintenance Program, a statewide address point database. One‐way drive and public transit time from residence to nearest center were calculated using R packages gmapsdistance and rgeos with the Google Maps Distance Matrix application programming interface. A marginal model was constructed to identify predictors associated with one‐way travel time.

Results

We identified 2522 adolescents with 3058 corresponding residential addresses and 12 pediatric cardiac surgical care centers. The median drive time from residence to nearest center was 18.3 min, and drive time was 30 min or less for 2475 (80.9%) addresses. Predicted drive time was longest for rural western addresses in high poverty census tracts (68.7 min). Public transit was available for most residences in urban areas but for few in rural areas.

Conclusion

We identified areas with geographic barriers to surgical care. Future research is needed to determine how these barriers influence continuity of care among adolescents with CHDs. Birth Defects Research 109:1494–1503, 2017.© 2017 Wiley Periodicals, Inc.

Number of times cited according to CrossRef: 5

  • Proximity to risk-appropriate perinatal hospitals for pregnant women with congenital heart defects in New York state, BMC Pregnancy and Childbirth, 10.1186/s12884-020-03025-4, 20, 1, (2020).
  • Self-management Needs of Adults With Congenital Heart Disease, Journal of Cardiovascular Nursing, 10.1097/JCN.0000000000000701, 35, 6, (E33-E43), (2020).
  • Using GIS to Address Epidemiologic Research Questions, Current Epidemiology Reports, 10.1007/s40471-019-00193-6, 6, 2, (162-173), (2019).
  • A model for geographic and sociodemographic access to care disparities for adults with congenital heart disease, Congenital Heart Disease, 10.1111/chd.12819, 14, 5, (752-759), (2019).
  • Inpatient admissions and costs for adolescents and young adults with congenital heart defects in New York, 2009–2013, Birth Defects Research, 10.1002/bdr2.1809, 0, 0, (undefined).

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