Proximity to Pediatric Cardiac Surgical Care among Adolescents with Congenital Heart Defects in 11 New York Counties
Supported by the Centers for Disease Control and Prevention (Grant number: CDC‐CK12‐1202 – Emerging Infections Program).
Conflict of interest: The authors declare that there is no conflict of interest.
Abstract
Background
Many individuals with congenital heart defects (CHDs) discontinue cardiac care in adolescence, putting them at risk of adverse health outcomes. Because geographic barriers may contribute to cessation of care, we sought to characterize geographic access to comprehensive cardiac care among adolescents with CHDs.
Methods
Using a population‐based, 11‐county surveillance system of CHDs in New York, we characterized proximity to the nearest pediatric cardiac surgical care center among adolescents aged 11 to 19 years with CHDs. Residential addresses were extracted from surveillance records documenting 2008 to 2010 healthcare encounters. Addresses were geocoded using ArcGIS and the New York State Street and Address Maintenance Program, a statewide address point database. One‐way drive and public transit time from residence to nearest center were calculated using R packages gmapsdistance and rgeos with the Google Maps Distance Matrix application programming interface. A marginal model was constructed to identify predictors associated with one‐way travel time.
Results
We identified 2522 adolescents with 3058 corresponding residential addresses and 12 pediatric cardiac surgical care centers. The median drive time from residence to nearest center was 18.3 min, and drive time was 30 min or less for 2475 (80.9%) addresses. Predicted drive time was longest for rural western addresses in high poverty census tracts (68.7 min). Public transit was available for most residences in urban areas but for few in rural areas.
Conclusion
We identified areas with geographic barriers to surgical care. Future research is needed to determine how these barriers influence continuity of care among adolescents with CHDs. Birth Defects Research 109:1494–1503, 2017.© 2017 Wiley Periodicals, Inc.
Citing Literature
Number of times cited according to CrossRef: 5
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- Laura H. Hays, Jean C. McSweeney, Anita Mitchell, Christina Bricker, Angela Green, Reid D. Landes, Self-management Needs of Adults With Congenital Heart Disease, Journal of Cardiovascular Nursing, 10.1097/JCN.0000000000000701, 35, 6, (E33-E43), (2020).
- Ellen K. Cromley, Using GIS to Address Epidemiologic Research Questions, Current Epidemiology Reports, 10.1007/s40471-019-00193-6, 6, 2, (162-173), (2019).
- Katherine B. Salciccioli, Abiodun Oluyomi, Philip J. Lupo, Peter R. Ermis, Keila N. Lopez, A model for geographic and sociodemographic access to care disparities for adults with congenital heart disease, Congenital Heart Disease, 10.1111/chd.12819, 14, 5, (752-759), (2019).
- Wan‐Hsiang Hsu, Kristin M. Sommerhalter, Claire E. McGarry, Sherry L. Farr, Karrie F. Downing, George K. Lui, Ali N. Zaidi, Daphne T. Hsu, Alissa R. Van Zutphen, Inpatient admissions and costs for adolescents and young adults with congenital heart defects in New York, 2009–2013, Birth Defects Research, 10.1002/bdr2.1809, 0, 0, (undefined).




